– Revisiting the theory in light of constructive criticism
On mental health advice, hypocrisy and hope for recovery.
Looking back at that first blog post, I feel… Well, at first, I feel nothing, because it takes me a while to figure out what I’m feeling, but I think I feel… Shock. I remember the process of writing it in the midst of planning my grandfather’s funeral, during a pandemic, and I wonder… What the fuck was I doing? During a time of crisis I should have been focusing on my family and looking after myself, but instead I was scribbling out diagram after diagram in the hope that one of them would make me feel better. No wonder people were worried about me: I wasn’t worried about me, and that perhaps, is the most concerning thing. Although I was advised to take time off, I kept trying to work in one way or another. Did I step-back from the event I was co-running? Did I stop working on my thesis entirely? Did I fuck. I wrote a whole essay giving advice about how and why we should be kind to ourselves – none of which I took. I knew what I wanted to do in theory, but had no idea how to apply it to my own life in any consistent way.
I’m so grateful for everything that blog did for me: it helped me figure out the connections between my research and my personal life, it gave my work and writing visibility and led to the opportunity to present at some incredible events where I met fabulous people. All of these opportunities, and the amazing support I received in response, made me feel even worse. I publicly state that I hate when people give trite mental health advice and voice my distaste for how well-meaning mental health campaigns and academic writing obscure the messy realities of dealing with mental illness – whilst doing both of those things. We should be kind to ourselves, I said, whilst doing things in private which actively harmed me. Be kind to others, I said, whilst slowly isolating myself from the majority of people I was acquainted with because I lacked the internal resources to be kind. I was, and probably still am, a hypocrite. Writing about something is different from doing it.
I was trying my best the only way I knew how: by working. When I’m working I know who I am. When I’m working I can create useful things for people and I can make uncomplicated connections because I know who I am when I have a designated social role. When I’m working I don’t have to worry about my identity. My work gave me some level of stability, but doing it was just another way to avoid my problems. My theory of ‘Kindness as Praxis‘ was meant to be about how we can use our research skills to improve our mental wellbeing and personal lives, but my real aim was to be stable enough to be able to work – fuck the rest of it. I want to be a brain on a stick. Luckily for me, workaholism is baked into our capitalist society, which rewards my unhealthy habits and further obscures the difficulties I experience. Maybe that’s why I sadpost so much when I get upset; I have always been productive enough that few people have ever taken my mental illness seriously. I just want to be believed.
I was trying my best, but I still felt like a fraud. I was lucky to be given a little perspective in the form of feedback – aptly, through my work. I took my original ‘Kindness as Praxis’ talk to an event called [X]pertise run by the Learning Enhancement and Academic Development Service at the University of Glasgow which is run to promote communication across disciplines and give researchers a chance to showcase and talk about their work. This event was a little different to usual conferences as it included mentoring. After I ran through the talk, my mentor asked if I could explain about the practicalities of how the theory worked. What did it look like?
It was then that I realised I had no idea. I was doing what I hated: hiding behind academic theory and glossing over the difficulties of living with mental illness. I felt so out of place discussing my problems at an academic event, that I had omitted half of my story, which actually perpetuated the personal/private divide I was trying to speak out against. I did it to myself. I was lucky that my mentors were supportive and encouraged me to speak my truth. Instead of presenting a theory about making impact in a nebulous manner, I wrote myself into my presentation to show what the impact of living by my theory had been.
The following is a re-write of my ‘Kindness as Praxis’ theory, which turned a nigh unintelligible scribbling into what I hope is something that can actually be used, as well as something that highlights the lesser-appreciated skills that researchers develop throughout their studies.
Kindness as Praxis Revisited
I used the graduate attributes, which are the soft skills we develop whilst doing academic work in any field, to create an outline of what kindness as praxis might look like.
The structure has much in common with the stages of carrying out a project.
As easy as it would be to leave it at that, this methodology is not just a list: it’s a story.
A listicle, if you will…
Step one: finding a concept
Step one is much like finding a suitable topic for your research project: you have to identify your needs (as you would spot a niche that needs to be filled in your research field) and analyse the most viable way of meeting these needs. It’s like pitching a project to yourself: a self-improvement project *cringe*.
My step one happened after my break-up. I was still processing a lot of the traumatic things I had been remembering and realised that if I wanted to meet my goals as a researcher and (less importantly for me at that point – lol) as someone capable of living a long and healthy life, I needed to find a more sustainable way to cope. I was lucky to find a supportive GP who confirmed my suspicions that I am suffering from emotional dysregulation. I took this information to a psychologist who confirmed my BPD diagnosis and knowing this helped me identify areas in my life I wanted to work on.
Step two: research
Step two encompasses doing new research for your personal project and identifying the ways your academic research might be applied to your personal life.
Having my BPD diagnosis meant that I could find more effective ways of coping, because, though everyone experiences the disorder differently, it meant that I could at least narrow down my research and find resources more specific to my needs.
I also realized that I could apply some of the game design principles I had been researching to my personal life. The main thing that helped me was understanding different types of empathy as detailed in my original ‘Kindness as Praxis‘ post. Tl;dr: The conclusion of my findings was that sometimes I unconsciously shut down my emotional empathy because I have a tendency to experience overwhelming emotions and when I do that, I have to try and use my cognitive empathy to access, understand and process my emotions in a more mindful way. I try and apply this to my relationships, which makes them complicated. I’m doing better, but I’ve had to reduce my connections. I fail a lot and I can’t always tank the pain it causes. Relationships are risky for me.
Step three: creating resources
This step is one for all of you fellow admin lovers out there! Every good project needs resources to help you organize and present it.
Once I had narrowed down the things I wanted to work on, I created resources to help me work on them. Using my DBT workbook which I use (and threaten to set fire to) every day, I made a colour-coded diary including emergency action plans and coping mechanisms, as well as a list of positive affirmations which I have plastered across my flat.
My diary is a useful resource I can carry with me, so I have access to my action plans whatever I am doing, wherever I go (which is nowhere right now lol). The affirmations are written in strategic places around my flat so that when I’m having an episode so bad I can’t check my diary, I am reminded that what I’m feeling will pass. It will not last forever.
Step four: do it
This step is both the hardest and the least immediately rewarding – both with regard to completing a research project and maintaining one’s mental health. It’s doing something every day, forgoing instant gratification and thinking about the bigger picture. When you’re doing a research project it’s easy to procrastinate because there are other, more immediately satisfying things to do. When a project is going well, it doesn’t look like much is happening – it’s a case of quietly keeping yourself on track.
For me, this is similar to maintaining my mental health: it’s only really noticeable that I have a disorder when I use a maladaptive coping mechanism as a way to deal when things have gone wrong. Maladaptive coping mechanisms are the loud things, the noticeable things, the bad things; they’re an extreme way of expressing the severity of the emotional pain I am in and a way of escaping it. Although they’re very effective in the short term, these behaviours are things capable of doing long-term damage to both myself and my relationships.
Living well is often thankless. When things are going well, it looks effortless, when actually, I’m walking on a tightrope, carrying a pole on which my healthy habits are balanced. If I make one wrong decision, I risk falling, and there’s not a net to catch me. All I can do is keep walking and hope that, one day, my funambulism will feel as effortless as it looks.
Step five: editing
Like every piece of academic work, your self-improvement project will need adjusting and revaluating as you go along. There would be no point to research if we already knew everything, so it’s important to be reactive to our findings, so we can improve our work and adapt to overcome difficulties.
One of my worst relapses happened when I caught COVID, which developed into long COVID. I struggled because one of my main strategies to control my mood is physical activity. Being ill meant that I couldn’t do it. I didn’t know what to do at first, so I fell back on my old, maladaptive coping mechanisms and it fucked me up. Losing my ability to be active made me realize I had been using it as yet another way of avoiding my problems. Being forced to slow down meant that I had to find other ways to cope: I FINALLY started doing DBT and facing my problems rather than (literally) running from them. Hopefully when I can exercise again, I’ll be able to incorporate it into my lifestyle in a more balanced and sustainable way.
Step six: communicating
Once you have a chapter of your project done, and something to say, it’s a case of finding a way to present the information that will make it interesting and comprehensible to others. This might include changing your presentation style for different audiences: are you giving a talk, or a paper? Who is the audience? Who are you communicating to and why? Is what you’re saying appropriate? What does your communication say about you? Apparently these considerations also apply in your personal life. Fuck.
Characteristically, I enjoy communicating when it’s for work: I give a decent presentation, and I’m an excellent teacher (with more to learn). However, everything else…
I’m still in the process of learning how and when to communicate my feelings. I’m lucky that I have a few people I can safely vent to about my silly problems which are not problems (more specifically, problems which were once problems, but are now feelings which appear disproportionate because they’re divorced from their context). They’re people who understand I’m still working really hard on steps 1 – 5; people who give me the kindness of the benefit of the doubt whilst I figure out more considerate ways of communicating in general. Otherwise, a kindness I can give myself is admitting that I want to be happy more than I want to be sociable. I don’t have to do friendships in the same way other people do. It’s a bit of a shit that fixing one’s interpersonal communication isn’t something one can do alone, so until I get access to a therapist I’ll be living a very careful life and making changes that help me cope a bit more easily.
The most valuable thing I’ve learned about communication in the past few months is when not to communicate. Isolating oneself is listed as something ‘destructive’ that people with BPD do, but taking time just for me is often one of the kindest things I can do for myself.
One of the adjustments I’ve made is my use of social media: the sadposting. I wanted people to understand me (which led to making some wonderful friends online), but I was also using social media as a form of self-harm. Using social media when I felt vulnerable and impulsive meant that I broadcasted information about myself that, actually, I would rather keep private. I didn’t enjoy the unsolicited advice, or attention I received from such posts – why was I posting when it just made me feel worse? I think perhaps, that my sense of self was so tenuous, that any kind of acknowledgement made me feel like I existed. I didn’t care about protecting my self-image because it didn’t feel as if I had one.
The truth is, I’ve been constructing a sense of self from almost nothing. I know that I was someone, at one point. I know that I liked things and wanted things for myself. I lost myself. I lost myself on purpose because it was too painful to be the person I was. I wanted to say goodbye to them. I wanted a new face, a new name, a new life, a new everything and found an even worse one. I became someone else. I hid. I moved from one dangerous relationship to another and pretended to be someone I wasn’t. It wasn’t her fault, but it is my responsibility.
I am not her any more. Was I ever? If she was anything, then she was my illness. I’m getting better now.
I have found myself again and actually I quite like them. I want to take care of them.
I’m finally mentally well enough to be able to appreciate my freedom.
Doing DBT has helped me remember who I am and what I value. I am not a story: I do not need to be told in order to exist. I am more than what I produce and more than what I can do for others. What I do is not a means to an end, but an end in itself. Doing the thing, is more important than sharing the thing; being appreciated is wonderful, but enjoying what I do is more so. Extrinsic motivation is a nice supplement for intrinsic motivation, but, where possible, it should not usurp it. I am allowed to exist entirely for myself: alone, in an empty room, without an internet connection.
But OBVIOUSLY I care about your opinion babes, you’re not like the rest of them. Remember to like, share, comment and follow my blog! You mean the world to me.
Kindness as Praxis as a Methodology
A methodology is more than a selection of methods, it’s an approach to research.
Similarly, ‘Kindness as Praxis’ is a method, but it’s also an approach to life.
In all of my talks I included this slide:
I didn’t take my own advice. It was a form of internalized ableism. I was trying to apply neurotypical standards to a non-neurotypical problem by being ‘kind’ to myself in the wrong way. I advise people that our research is just one part of who we are, that being kind to ourselves is about having a life outside of work and that we should keep our careers in perspective and that perhaps we can use what we learn at work to fortify our personal lives: we should work to live, not live to work.
I agree with this advice: in principle, but not in practice.
Writing about something is different from doing it.
I still live to work and I’m OK with that. It’s not really about my career as such, but my capability to teach and to write. I’m privileged enough to be in a position where I’m paid to do both, but I haven’t always been and even back in the darker days I still made it work.
That’s why I need boundaries. I need to separate my personal from my professional life because I need something that’s simple. I need something that’s uncomplicated by my mental illness. My life is the best it has ever been and I would like to try and enjoy it, even if I still don’t feel like I deserve it.
Friendships and relationships are getting a little easier, but they are harder for me than an average, neurotypical person. I will neither concede that point, nor use it as an excuse to treat people badly. What I will do, is mitigate my risk. Maybe one day, I won’t have to treat every relationship like it’s a time bomb. Maybe one day, I’ll trust myself. Maybe one day, it’ll be effortless.
I see recovery as making the same difficult decision every moment of every day until it becomes a part of who I am. I still haven’t quite figured out how to be kind, but I’m very relieved that I have a self to be kind to and that I finally care enough about them to try;