– aka mental illness visibility
Trigger warnings: this blog contains themes including mental illness, self-harm, suicidal ideation and death. Please engage with this content responsibly and if you are here for the acknowledgements then I encourage you to skip to the end!
Part one: reflections on reader reception
My writing about cognitive empathy received some really great feedback and generated some interesting discussions that partially prompted this aftercare post. After reading a draft of my last blog, some of my loveliest and wisest friends told me that the content was concerning and rightly asked me what I wanted to readers to get out of it: did I want to worry people? Had I thought about what people might think? For someone who studies reader reception theory, I am painfully ignorant of how my work might be received beyond ‘#mood’. But, it wasn’t that I hadn’t thought about my readers – I just hadn’t factored in that people that I know might care. Then when they told me, I went ahead and did it anyway.
So, did I want to worry people?
The answer is no… worrying people is just an unfortunate side effect of attempting to cultivate honest and meaningful relationships with new people when you are mentally ill and experiencing a relapse.
As much as I appreciated the advice, to listen to it on this occasion would have been to do myself a disservice.
After so many years negating myself and trying not to have an opinion, I finally feel confident enough to express myself loudly, live unapologetically and to be myself in public. The amount of pain I’m carrying around hasn’t changed, I’m just expressing it.
Sometimes the truth doesn’t fit into the comforting narratives of self-improvement that people want to hear – those narratives tell us that there is a solution. I’m not here to perform the emotional labour of reassurance, to wear a mask or to negate my experiences. I want people to know that if I can be myself in public that they can too. I want to be visible: if that hurts, avert your gaze. If it helps, then stay with me – you’re my reader. I’m here to tell you that you are not alone.
Thank you to everyone who comments on my posts, shares them and expresses their support: each message is a little miracle.
An even bigger thank you to everyone that has the AUDACITY to care about my wellbeing. Please stop (jk), but also, I’ve written you a little something in the last part of this blog because I really do deeply appreciate everything you do for me, though I’m still not sure why you do it.
If you are one of the people who is going to *do a big concern* please feel free to skip to the end to recieve your well deserved applause! Please don’t punish yourself with my writing if you don’t want to.
I love you whether you like my work or not. My writing is just a small part of who I am, even though it often feels like the only thing that matters.
This case study doesn’t show an upwards trajectory – which of course is what I hoped for. It shows that even though I do practice what I preach, my progress isn’t linear. You can do all of the right things and still feel like shit sometimes.
We try, we fail, we try again, fail worse and then and remember that sometimes that one good day can make all the shitty days worth it.
Until it doesn’t.
My cognitive empathy diagram and my current lifestyle are the culmination of years of trying. I do the things: eat right, sleep, take meds, stay in contact with people, work out, do creative things, try and help people. So, does it work?
I guess? I’m still here to post this, but also things are just difficult – such is life.
Part Two: new academic year, same volatile me
As I said, I kept delaying this post in the hope I could show you real progress. But, after coming out of a particularly dark patch, I realised that I was waiting for something that may never come, so I’ve chosen to mark the end of my first academic year as a PhD researcher instead. To make a new start – well, another new start.
With a new start comes a new notebook for the year:
– it already got rained on, which is fucking typical. I wanted to throw it away, because it felt ruined. I bought it to start something new. I wanted something fresh, untarnished: a blank slate.
This is black and white thinking, a habit which has dominated my life: if something isn’t perfect, then what’s the point? I’m either good person, or I’m a bad person. No in-between.
This is neither healthy, nor realistic. What it is, is a contributing factor to the pattern of increasingly severe suicidal ideation I live with. The urge is fairly common which is both sad and reassuring – it sucks, but we’re not alone. I can’t speak as to why others feel this way, but a small part of my own struggles with the desire to end my life stems from black and white thinking. I often feel that I’ve left it too late to be the person I want to be, that I’ve wasted too much time. Sometimes I want to die because life feels meaningless and sometimes it’s because everything feels too meaningful. Every little mistake I’ve made feels like one mistake too much. There are times when my desire to die is rooted in the sincere wish for a new start.
I’m always trying to feel fresh, untarnished: a blank slate. To go back. Sometimes I feel like if I can’t attain the perfection I’m reaching for then I may as well throw it all away, like that journal. All I want is something that doesn’t feel ruined.
What I should have realised, and what I’m coming to accept, is that we can’t wipe clean the experiences we’ve had. Not only is it impossible, but though starting over would rid us of all of the bad things that have happened, it would erase the good ones too. People aren’t blank slates by nature: we’re palimpsests and each new inscription makes up who we are and helps inform our experiences.
This feels like the kind of trite, inspirational insta-garbage I wish I could angy reacc to: I am suspicious of optimism, I hate being preached to and I hate getting unsolicited advice, so I don’t want to do that to you with this post. I’m not going to patronise us by spouting off ‘all the pain is worth it’, ‘beautiful things grow out of shit’ or ‘all hardship is just good backstory’ – ‘good damage’. Fuck that.
We are not all in the same boat. There is a social element to mental illness which is vast, complex and intersectional – some scholars within the medical humanities argue that mental illnesses are rational responses to the societal contexts which shape us, but that’s a topic for another time, or perhaps scholar. I’m just checking in.
I’m also not going to bullshit you by saying something like ‘scars are beautiful’ because they are an ugly reminder that I have covered with ink:
It’s a pretty tattoo, but it doesn’t erase the scars. They will always be there. The lyrics speak to that. It’s Emilie Autumn quoting Hamlet (sooo meta, right?). Without digging into the intertextuality of the quotation and just looking at the lines themselves, the lyrics are there to remind me that even when I’m at my worst I’m still capable of being good. The good may not erase the bad, but it can inform it. I am still capable of learning, but that learning takes struggle – some of it meaningless and unnecessary.
My old notebook is a tribute to that. It’s the first notebook I used to record absolutely everything without tearing out a page. It’s full of what seems like useless information – things I tried that didn’t work, the good days and the bad. It’s full of calories I should not have counted, schedules I scrapped, projects I started and never finished, ideas for my thesis that I eventually threw out, and the seeds of what would become a formalised structure of coping mechanisms that have helped me restructure my life.
These pages and accompanying social media posts are also a case study for the theory of cognitive empathy I’ve been using on myself.
It’s never fun to get a null result
– but that’s the black and white thinking.
It only feels like a null result, on a bad day.
I can’t claim an upwards trajectory, but I’m learning that progress is not linear.
I want you to know that I’m trying. I am ok, but I also want you to know the truth – you can try and try to do everything right and you’ll still have a crappy day.
All of this effort makes the bad days feel even worse: what’s the point of trying to hold it together so much if I still malfunction and fall apart? But, even though the bad days are dangerously bad, at least there are more good days now.
I try and think of my journal as a way of editing myself: any writer will tell you that it takes many bad drafts to create one piece of good work. That’s one of the reasons I’m a shitty writer – I’m still writing through my bad drafts in the hope that one day I’ll get to a good one. I’m still learning to edit.
Part Three: Acknowledgements
It’s always good to have a second pair of eyes – or more if you’re lucky!
I never wrote acknowledgements for my dissertation, during which I felt very much alone. But now, I would like to write some acknowledgements, not for my writing (which I’m woefully short on), but for those who are facilitating my ability to work in the future. I want to thank the people who have really made a difference to my life in the clusterfuck of the last academic year.
It’s difficult for me to express how I feel, because I don’t want to imply that I need people. I want you to know that I’m quite capable of getting through this alone, but I am extremely happy that you’ve been here.
Thank you for your support, advice and company.
Charlie: You are persistent, smart, patient and giving. You always offer me a level-headed perspective and are an inspirationally strong woman. Thank you for talking about everything and anything with me. I’m proud of this friendship we’ve built together: my relationship with you is the healthiest and most enduring of my life (no pressure lol). Thank you for helping me maintain this ‘delicate system’ of a person.
Grace: You are a kind and clever person. Thank you for taking me in!
Larna: You have always been a wonderful friend and it has been a privilege to see you become an amazing mother. Thank you for never forgetting me, including me in your journey and letting me be a flighty aunt to my handsome nephew Jack ❤ You are a talented artist and a beautiful person. I am so proud of you.
Maude: I miss you and will always remember you.
Marita: Thank you so much for your wonderful company and excellent editing skills!
Ollie: You are an excellent influence. I’ll always be better off for the pleasure of your company.
Simone do Carmo: An amazing, holistic personal trainer. You are everything you advertise yourself as and more. Thank you for helping me cultivate a positive mindset, be kind to myself and change my relationship to food after years of struggling with it!
Steph: You are talented, hardworking and so very loveable. You’ve always accepted me as I am. Thank you for helping me be strong and (I hope) a little like you.
Ruth: You have been a source of excellent support and advice; you’re teaching me so many excellent things and I am incredibly lucky to have such a wonderful person in my life.
Thank you everyone. I hope that I’m here enough for you too.